Natural Remedies

At Age 61 Got Dercums Disease

Posted by Lynette (San Clemente, Ca.92672) on 12/08/2010

Dear Ted:
Somehow at the late age of 67 l got Dercum's Disease, can't make sense of it having been a health nut all my adult life. I've seen the only doctor in the WORLD who treats this, I see a top nutritional Ph. D, still the lympomas are growing relentlessly day by day, getting bigger, multiplying and beginning to get painful. I'm not at the point of taking drugs, nor will I, have you any recommendations for me??? l just tried pawhealers herbal formula for them, no luck. I found this horror after 35 HMO doctors couldn't by discovering a test that was incredible, l recommend this for everyone, it's called, Peripheral Blood Morphology Assessment or Darkfield Microscopy. I know there is no cure for this, but someone has to know something about how to stop them or slow them down. I'm going to lose 20lbs l'm hoping this might help some, the nutritional doctor put me on a diet that contributed to weight gain but did help my cells, they no longer show "Rouleau", lt's a lot of Raw Dairy foods, no low fat.
Thanks Ted,
Lynette

Replied by Brooke
Montgomery, Tx, Usa
12/09/2010

I would try Castor oil packs and high enemas. My boyfriend might have what you have. Do the Castor oil packs for 4 days on and 3 days off and have enemas often. Also see a Chiropractor and get adjusted! I have always told my boyfriend that I think he might have a problem with his lymph, and the Castor oil packs really help with lymph. However, he is a man and he won't do the Castor oil packs, so I will never know for sure if it would help him! Let me know if you decide to try this - I would be interested in your results!

Replied by Dekay
Chicago, Il
12/29/2010

Where is the best to apply the Castor Oil Pack? I only did one before and placed it over the liver and abdomen. Thanks. I want to add... I have Dercum's Disease. They are on my arms, under arms, and thighs, back and butt, as well as my stomach. They range from different sizes & shapes. Very painful when pressed. My arms feels like riblets(rows)of small pea size tumors. My thighs have masses and lge. Lumps of lipomas. My right thigh is larger than my left. I feel them all throughout my stomach and butt they are size of marbles. What have I learned so far... Still researching. Hypoxia on a cellular level is the root cause. Karen Herbst on Youtube... Look up Dercums... Breathing I & II. I will try to provide links to help.

http://www.youtube.com/watch?v=IKNLz-9Q9rU

http://www.youtube.com/watch?v=1O_clbMYgWs

Hypoxia...explained Part 1, 2, 3

http://www.youtube.com/watch?v=9DsOaMEICgg

http://www.youtube.com/watch?v=UaZtW6I3SvA&feature=related

http://www.youtube.com/watch?v=Ss40DgCPamw&feature=related

Use of a trampoline 5-10 minutes a day

I've tried many things. However I want to try.... MMS and an oxygen concentrator prescribe by my doctor. Along with applying the restrictive breathing technique 3 times a day that Dr. Herbst recommends. I have been diagnosed with Dercum's, Thoracic Outlet Syndrome, Hashimoto, Fibromyalgia, Lupus, Vasculitis and Crohns. I have lost over 60 lbs with 15 more to go. Still weighloss does not stop the lumps or the pain. Actually it made the lumps more prominent. The truth is the lipomas were probably there all along, hiding under all the fat. I went from 230 to 165 (meat, vegetables, fruit, waters and teas-stevia only sweetner) Removed processed foods. Oh I read somewhere persons developed Lipomas drinking high Protein shakes, The year before I did do a diet where I did drink protein shakes for about a month.... Numerous times throughout the day.... Could have some truth to it. So one might want to stay clear of those. Hope this helps someone. I will post back on the regimen above in a month. Right now I am using Beta Glucans... To help my immune system. Any questions feel free to email me. Good health to you.

Replied by Brooke
Montgomery, Tx, Usa
12/29/2010

I would start the Castor Oil packs on your abdomen, over your liver area for the first two weeks. Put them on for 5 days and take a break for 2 days an hour to an hour and a half at a time. After that you could take some eliminants to help you with moving your bowels - such as Castoria (Fletchers)or any other good bowel mover, that has Senna in it. Use your intuition on the dosage. I take a whole bottle some days! Only a 1/4 tsp at a time, every 30 minutes. And other times, I only take 1 tsp - 1 Tbs in the whole day. I have been trying to get my boyfriend to do this for years and he shy's away from it. He is is no pain - I am not even sure if it is Dercum's - but I will keep on trying with him!

Replied by Don
Melbourne, AU
04/20/2014

According to Andreas Moritz a series of liver flushes might work. The theory is that the liver is blocked up and cannot filter blood sufficiently, and so the body stores the waste material in lipomas . Once the liver starts cleaning blood properly the lipomas reduce over time. I would use a topical methods and do the liver flush to attack it on two fronts. Some castor pack and apple cider type methods. Andreas has testimonials of liver flushes doing exactly this . check this hypothesis out, it doesnt cost anything to try, but is a bit of an effort. Most people wont try it because of the amount of effort required, but If u are really annoyed you will probably try everything that looks plausible.

Replied by Alexandra
Pennsylvania
06/22/2021

I sent the below to a Dercums doctor.... If you have any help, it's been 10 years since you posted this, but I wanted to see how you're doing now too!

All the best, Alexandra

--------------------------

I am a Veteran female patient 65 years old living in Pennsylvania with near certain Dercums Disease.

Had Valley Fever/ Coccidimicosis while in Army 1975 while stationed at Ft Huachuca, Az.

Large Upper body mass Lipoma 9.2 cm X 7 cm as a paraspinal mass in my R. Rhomboid Muscle ( No biopsy due to dangerous location ).

Lipomas in tops of both feet and appears R. ankle cuff multiple sizes.

Lipomas recently noticed L upper thigh 2 inch long new lipoma with other areas in Left forearm and multiple new places.

Hashimotos, + Hypothyroid and half a thyroid left with nodules so far benign started 10 years post Valley Fever/ coccidimycosis.

Recent all high numbers in the 300's of cholesterol panel LDL was in the good range.

Blood pressure up significantly today 148/99

Two inguinal hernia repairs. 3rd not surgically repaired.

Rheumatoid Arthritis

Weight 169 5' tall.

My 28 years researching Mycoplasma I believe that connecting the dots in my life that the underlying cause for MANY things is Mycoplasma- from Lymes to Mycoplasma Pneumonia, to scleroderma and Raynaud's and Rheumatoid Arthritis -the list goes on (I don't have scleroderma/ Lymes)

I believe my medical history and rapidly changing physical condition (Including a soft smooth size of a nickel growth on the roof of my mouth is potentially another lipoma.

No biopsy on the large mass due to the location / potential problems.

Epstein Barr Virus triggered 1986 after 1st Thyroid surgery at Portland, Oregon VA..

Presently R Elbow lymph gland swells to size of egg.

I am primarialy interested in diagnosis regarding this condition and I presently have 2 California doctors~

I see Dr. Mignot at Stanford for multiple sleep disorders.

I see Dr. Buchfurher in Downey, California for severe RLS treatment.

Cordially, Alexandra